Since being prescribed baclofen about a year ago, I've been finding it a great help for spasticity.
Until recently, I was getting by on 30mg a day - 10 in the morning, and 20 before bed. But I found I was getting really miserable about teatime, with spasticity-related foot pain, so it seemed the gap between doses was too long, and, with my GP's blessing, I introduced a new 10mg dose early to mid-afternoon.
This helped a little, but not a lot.
I've got clearance from my doctor to go to 60 a day (three lots of two tablets), so yesterday, I felt the urge to experiment with two in the afternoon.
And today, with two in the morning.
I'm still experiencing no side-effects, and it does seem that if I am a bit less stingy with it (still within the limits prescribed), I have a generally better day.
However, I'm concerned I have gone from (in my opinion) a relatively low dose (30) to relatively high (60) in a fairly short space of time. Although I'm tolerating it fine, the usual maximum, as I understand it, is just 80 daily, so seems like I'm getting close.
I know "tolerance" is not such an issue with baclofen as with some other drugs, but I do worry I will lose the benefit, in due course, and have nowhere else to go, as I'm already near the max.
I'm only fairly early early in my MS journey, and not visibly disabled, but still needing 60mg of baclofen! Should I be worried about taking so much, so early in the course of the disease, or is it a case of do whatever's necessary, and don't worry?
It's absolutely not a side-effect related problem, as I have no issues at all. I'm just concerned about how much I'm needing.