Hi there. I’m pretty new to MS, and I don’t know if what I say will help, but I had an MRI scan on my head on 23rd Oct last year, and a week later I got a phone call to come in to the Neurologist the next day. I couldn’t make it, but went in on the 3rd Nov, when I was told it was def MS… and deep joy, I wouldn’t even need a lumbar puncture. So, I make that 11 days to get a result, but they knew within a week. I’m on NHS treatment and in Northampton.
Having said about the quick turnaround between scan and diagnoses, I had been to the GP and various hospital departments somewhere between 10 and 15 times in the previous two years - since I first noticed a real problem with walking and balance.
I’m a keen Internet detective when it comes to symptoms, and I’d begun to rule things in and out within months of my first stumble, I even asked my GP “Any chance it could be MS?”. “No, it’s not that” came the swift reply. I haven’t seen her since, and I doubt she’d remember anyway.
My main concern is that they only ‘think’ it’s PPMS (mainly because I asked if it was that) and it seems the only treatment I’m getting is to be monitored by an MS Nurse every six months, and the occasional visit to a physiotherapist.
I understand that MS is a difficult disease to diagnose properly, but I wish I knew more about my variation of it. Maybe I’ll learn more as time goes on.
I hope you get a response soon about your tests.