I’m sure someone will know the answer too this one.
Two years ago I had my first consultation with a new neurologist (having not seen one for more than twenty years) the consultation lasted all of fifteen minutes and I had been escorted the sixty feet or so from the waiting room to the consulting room by him. I later received a copy of the letter He sent to my GP which discribed me as 5.5 to 6 on the EDSS scale.
I’m still struggling to accept that I have a disability, I knew I was ill, but I’d not even heard of the EDSS scale before and had to look it up.
But 5.5 to 6! I’m still on both feet (although occasionally fall over my own feet into a bush or onto my derrière) don’t use a stick or crutches and don’t have any mobility aids (although I could easily be beaten in a race by a sloth) I do need something but I’ve not been given any proper help with assessing my needs, the OT dismissed my questions about rollators, my GP ignored my questions about sticks, so I’ve given up on anything like that and have been researching mobility scooters. (And now my heads done in)
So here’s the question, how without seeing a patients’ decline and without any test can a EDSS score be given? I didn’t feel that there was enough to go on for this score to be arrived at, unless he was going purely on his experience as a MS specialist.