How do they diagnose what type of MS you have

New diagnosis and before diagnosis
1

Hi I am really intersted to know how a Neurologist can tell the difference between the different

Stages of MS, I have had symptoms for about 5 years and since jan/feb I have had 2 severe bouts

and 1 recovery , presently my symptoms have not gone away if anything they have worsened

what if any category would I fall into, I am presently not diagnosed, but interested in the pathology

Thank you

2

Hi Anon,

(If you don’t want to use your real name, why not make up a nickname by the way - it’s not so impersonal as having to call someone “Anon”)

If you have distinct “bouts” from which you recover - to a greater OR lesser degree - then almost certainly it would be relapsing remitting. Recovery does not have to be perfect for it still to be considered this type. Most people find there is (unfortunately) some accumulation of disability from repeated relapses, so still having symptoms, even whilst not obviously relapsing, isn’t at all unusual, and doesn’t rule out an RRMS diagnosis. It’s a popular myth that people with RRMS are “absolutely fine” between relapses - and for a few, this will be true.

But it’s much more common for people still to have symptoms, even when not relapsing. They may feel much better than before, but still not completely well.

Tina

3

Hi Anon,

Your neurologist will be able to tell you which form of MS you have, going by your history and tests that she/he would order. But I agree with Tina in what she has said.

Janet

4

Hi anon - yes neuro will decide. If it is relapsing remitting Nd you have had 2 “bouts” then you should qualify for DMDs - this is really really important to push for if necessary - you may not have to push tho if decent neuro . They slow disease progression and reduce relapses. Many available - there is a ms decisions website which will guide you through them. Sorry I’m talking rubbish as I’ve just retread your post and you say you’re not diagnosed. So I would shout for a diagnosis and make a nuisance of yourself until you get one Hope you are feeling better soon Gentle hugs Min xx

5

Thanks for all your help and kind wishes , I would prefer to be anon for now and if I have a diagnosis or not then will post

under my username, I don’t want people to think I am Neurotic , excuse me askin Min what is a DMD’S ? thanks again x

6

Dmd’s means disease modifying drugs

7

Thank you Karina you are a fountain of knowledge x