How do I do this for the rest of my life ?

[Inactive_User]

@ms wife

Hi all My partner was diagnosed with rrms in feburary this year after temporarily losing the sight in 1 eye. Since then he has had constant pain in both legs varying from toes shins knees calfs thighs or on a bad day all of the above. After 5 months he has had enough and it is taking a toll on his mood and the rest of his life. We have an 11 month old son and he wont even leave the house to take him park. His mood swings are now getting to me too and he snaps at me and our baby almost daily. I know its not his fault but its not fair on our child. He was prescribed gabapentin and a short course of steroids but neither have worked. Any suggestions on managing the pain so we can have some quality of life again.

Hello hun. I think you might find more replies if you start this as a new thread. Or try the carers forum…we can support you here, but I reckon you need a new post to get more advice.

I am so sorry to hear how MS if affecting your lives…especially when a young child is involved.

Sounds like your fella needs better medication. Has he been allocated an ms nurse yet? These bods can be so helpful. If he has, then get him to ring her. Perhaps she can organise something.

February isnt that far back it can take ages to get your head around a diagnosis as big as ms.

luv Pollx

[fluffyollie]

hi there

really sorry to hear that- i would say that a good action would be to speak to the MS nurse (assuming you have one) or neurologist about the pain, as there are a lot of things that can be prescribed to help especially at night which may aid sleep. in turn this will aid mood.

regards to mood, he should speak to the gp as counselling or even antidepressants could help- there is a lot of stigma attached to their use, but usually based on ignorance. certainly worth a conversation with your doctor.

you as his significant other have feelings too, and trying to remain buoyant for him AND look after a baby is a hard thing to do. get in touch with your local MS society group and see if they are running ‘getting to grips’ course. me and my wife went on that, where we each met others who were in a similar position to each of us. we both found it really useful.

there is support and help out there, and things can be done so please don’t despair

fluffyollie xx

[Inactive_User]

Exactly how I felt/still feel.

why me ? Why am I not normal anymore ?

Just some of the questions I ask. I was diagnosed 3 months ago and felt like I had got to 45 and my life is now over !

ms nurses didn’t really help and I felt like I was on my own. I have struggled with various pains and feeling off, but no one would tell me whether it was ms or not. I have done everything myself. Physiology, psyciatrist with no support. Major decisions like whether to start medication or not.

enough of my ramble, we will get there and be in a good place soon !!