How do I cope? Waiting game

New diagnosis and before diagnosis
1

Hey guys,

Following on from my last post I’m still waiting for my invite to have an MRI which I’ve been told should be pretty soon due to me being a RANA patient.

I know I don’t have any actual evidence as of yet and I bear that in mind, the whole “hope for the best but prepare for the worst” mindset is on. I ain’t been dx with ms yet but I trust gut instinct and what I’m feeling ain’t normal. My left arm is on FIRE and that’s when I can feel it, lot of the time I can’t :pensive:

I have everything crossed for a clear scan but also wouldn’t bet anything on one cos I really don’t feel like it’s gonna happen.

I hope this ain’t offensive to people who are diagnosed, I know it could be taken as me being a drama queen but I’m genuinely just scared and hate the not knowing.

Any advice greatly appreciated xx

2

Hi there,
I was (provisionally) dx after having MRI. I say provisionally because my MS got better on it’s own and went away. Nine years later, it came back and I was (officially) dx after having lumber puncture.
It’s probably not worth fretting over as it’s not making you feel better. As soon as you get dx, you will receive treatment so that you feel alright again.
I’m still waiting for treatment and surgery since my January relapse, 6 months ago; I find time passes quicker if you don’t check up on it so often.
Best,
JP

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