The best treatment I’ve ever experienced has been from my rehabilitation neurology specialist. He’s amazing, understands drugs including the best ways to take them (I’m not talking about DMTs here), referrals for physio, wheelchair services, orthotics, bone density scans. He is also the lead doctor for the neurological rehabilitation unit, where people are in patients for rehab from all kinds of neurological disorders and events. Many people with strokes, brain haemorrhages, heart attacks, cerebral palsy and MS. The only thing he can’t do is prescribe DMDs, but that’s no problem for me anymore.
I’ve been treated in the rehab unit 3 times, once after a severe relapse (I was there for about 6 or 7 weeks that time), then for some rehab after my colostomy, and again after breaking my femur last November.
I feel very lucky to have such an amazing doctor, and access to the small rehab unit when I’ve needed it.
I do agree though, many of our specialist doctors and nurses are a bit pointless. In fact my MS nurse went so far last time I spoke to her as to ask me, ‘what do you think I can help you with?’ Nothing it turned out. Equally, now I’m no longer a DMD candidate, I decided I’d stop seeing an MS specialist neuro, just stick with my rehab doctor.
In saying this though, there are many people, especially recently diagnosed with RR, who are seen by some wonderful neurologists who do an excellent job of communicating with people, getting them the best therapies (not just disease modifying drugs) and treating them. Equally there are some great MS nurses who do a fabulous job for their patients. I’m still envious of anyone who gets to see the wonderful Professor Giovannoni at Barts Hospital (he was my neurologist for a few years before I moved out of London and even for a couple of years after that).