Hello. Can anyone offer any advice or feedback on experiences taking Tysabri? Any improvements to condition, any side effects, how side effects can be managed etc.
My husband (age 50) was diagnosed with MS earlier this year. He has been using Avonex for 5 months but has relapsed in this time and today we were told he has 3 new lesions. The advice from his MS nurse and Neurologist is to start on Tysabri.
There was a brief discussion about the treatment, passing mention of PML, and then we were sent away with the information pack. The reading is showing excellent rates for reduction of relapses. However so much focus is put on PML it’s very frightening.
My husband is having a blood test tomorrow for the JC virus and then the consultant wants to sign him up for the next round of treatment, starting in 3 weeks time.
I would love to hear from anyone who has anything to say - good or bad - about Tysabri.