Hi, im new to this, i have had RRMS for nealy 4 years. Ive found it hard to speak about my diagnosis and now more and more illnesses are being added to my string of problem’s.
I feel i dont know who i am anymore, ive been hiding it all away untill yesterday i had a break down and of all places at work. Ive tried to seek help but i feel they dont want to know inless im about to harm myself and thats not the case.
I don’t know where you work but they have a responsibility to support you. You could contact ACAS for advice. 03001231100.
If you want support from people who understand you have come to the right place. 
I’ve only been diagnosed for four months and, although my employers and colleagues are trying to be supportive, they don’t really understand. To be fair I don’t really understand. 
Take care.
Thank You, it is very hard even at 4 years with RRMS im still finding it hard to understand to come to terms with and i think thats where the fustration is coming from because those around me say they understand but i feel they dont they caint feel my pain they just see my brave face. Thats why ive come here in hope someone is able to understand
Welcome, Samantha
As they say, bottling things up is not good, but it can be so hard to talk to others about our health issues. I know, I bottle things up about my health. Just two days ago I burst into tears at the GP, and he said that it is important to talk. Often easier said than done though.
So don’t feel embarrassed that your emotions eventually surfaced, and at work. I think many of your colleagues will be able to relate to the pain you have been hiding away, that they may not have been aware of until your emotions broke through. Though not walking in your shoes, they will know what distress feels like, even if they don’t know how your MS feels, or even understand the impact uncertainty about your health can have on your sense of being, particularly when it is worsening. It may now make it easier to talk to one or two of them about it.
Unfortunately in this country (I presume you are in the UK), there is a real shortage of support under the NHS, for people’s mental well-being. One thing that helped me, a few years ago, was an online course of CBT that I was given the details of by my GP. I found it gave me some useful coping strategies, and felt that it should be something that everyone with a new diagnosis of a serious health issue, or chronic health condition should be offered. It might not help everyone, but it helped me somewhat.
You’ve come to the right place here. You can voice your frustrations, worries etc and people will understand!
Take care.
Hi there
Yes, the self-harm thing is a primary indicator to jump to the front of the queue for help but I suggest you complete the PHQ9 survey which you can find on the web. PHQ stands for Public Health Questionnaire and as I understand it, is what the medical community use to measure anxiety and depression.
This is the form I took to my GP and when he saw my score it prompted him to action. You can get a high score without the suicide option…
I understand, who is there to talk to? I tried going though various channels and my outcome was because i wasnt at point of self harm it felt like they were not intrested at all and it shouldnt be case if someone needs someone to talk to thay have taken the first step to get the help to be turned away that could then lead to suside.
I just feel people just dont understand because its not visable by eye and as of yet i dont have to use any kind of walking aids. Its so upsetting people with hidden disabilities dont get treated the same as others. But get silly remarks like my relation of a relation had MS they passed away last week. Like how is that meant to help 
Im in the UK my ms nurse is great and if i do have a bad day i can ring her but not always is she available to talk as she has a job of caring and helping many like you say because lack of staff.
After coming to her i do feel much better know many of you replying know and understand my feelings.
Thank you 
Thank You so much, ill have a look at this later after the luttle one has gone to sleep and i have me time to think.
You might find this link useful
Thank you 
Hi there i feel the same. I have had rrms for 4 years. I dont no any one with it either. It feels like no one understands at all not even my ms nurse. I have had bouts of vertigo so i got physio exercises to do but my vertigo has got worse and all my nurse says is , oh are you doing your exercises? Have you seen someone for anxiety? Well yes i do all of that but its got worse its all day every day and want to know if its a relapse or not. I have two young girls and my husband. He says he understands and to try live a normal life well its hard when my vertigo is a pain and i worry about the future with this . It sucks x
Sorry for the late, I understand totaly how you feel, im currently going though CBT with wellbeing and even them ask well would a mum without ms still feel the same as you, i totatly get what they saying but they still dont understand the complications we go through daily well i do at minute. I have considered going for MS councling just to see if they do understand because only speaking to people with MS are actually understanding my feeling at minute. My partner has been the same ive tried to ignore the fact i have MS for 4 years and been able to lead a kinda normal life until i had covid in dec 2021 and since then ive not been the same im always ill, tired, and very little motivation. Hope your feeling okay? Im happy to talk