- stoopid keyboard on kindle makes your post appear x 4… soz
thanks for all the replies.
The important thing is that we can identify our emotions as WE experience them.
What we mustn’t do is attach labels because they are ‘accepted’ terms nor should we accept terms which may be inaccurate but those around us find acceptable because they are more ‘comfortable’ with them.
Also we must accept that some pwms will experience the same emotions but label them differently – one man’s depression is another man’s grief.
On a personal note, I get immense support from an old student friend who I visit occasionally. No mention of emotions, `M.S. not discussed - he puts his arm round my shoulders and physically supports me.
TMSIAFPITA …
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the acronym at the end of your post has even auntie google baffled!
x
I reckon it’s “This MS Is A F…kin’ Pain In The A…” going on previous posts ?!!
Dom
Lou. I guessed what Iykwim meant! Talking about having a label…for years I had no definite diagnosis, but PPMS was strongly suspected. I felt I needed a label to know where I ‘fitted’.
My current diagnosis is ‘idiopathic spastic paraparesis’. So as idiopathic means unknown, I still don’t have my much wanted label!
Pollx
I think that’s definitely true, and I wasn’t entirely joking in my other comment about those people being in a bit of denial themselves. But that’s probably something we all do in different areas of life. How often do we quickly turn the page or change channel when the newspapers or TV news have stories of terrible suffering, or look the other way when going past a homeless person? I was going through the city centre today and wanted to look away when I noticed the large cross that always gets erected during Lent here (and I’m a believer!)
As with those people you’ve come across, seeing other’s suffering can often make me feel very uncomfortable. I guess there’s all kinds of reasons for this - fear of it, a sense of helplessness at not being able to do anything about it, or guilt at the fact that I’m not suffering in the same way as them, for absolutely no reason at all other than luck. So I ‘deny’ it by turning away or finding reasons to ignore it, instead of somehow standing with those people in their distress (which is what the bible defines as true religion). That’s something I don’t do enough, despite the fact that everything I’ve experienced with MS means I can empathise.
Um, that’s probably all getting a bit serious now - my apologies! Er, I think I’ll go to bed now
Dan
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I’m with Alison as regards the Kubler-Ross model.
Some of us will remember an individual (many months back) who had some very angry posts on here, and then refused to admit that he was angry, or in denial.
We deal with a Dx in different ways - particularly if we have been expecting it for some weeks or months.
It can be easy to say that “there is always someone worse off than you (or me)”.
For the last two weeks I have been in a hospital where there were people with a progressive neurological condition (but not MS) who were far worse than me.
One may have been grieving for what he had lost, the other was very cheerful.
Like I said: “We deal with a Dx in different ways”.
Now ask yourself - Is it the DX that is the problem, or your condition?
Geoff
Welcome to Holland - a beautiful poem, not about MS but relates very well.