I've always tried to avoid using terms like 'Suffer from MS' or 'MS Sufferer' and the like. I cringe when I hear or read it, as well as being mindful of those poor souls who really do suffer from truly awful illnesses and situations. Instead I don't mind saying something like 'I have MS and I am strugling with....' .
Recently I've been struggling rather more with my own MS symptoms, you folks will know what I mean by that. Which has meant trying to describe those symtoms. I know it's been said before but, 'Fatigue' in particular is a word that does not adequately decribe it's pernicious nature. So, I tend to say 'Cronic Fatigue' or 'Exhaustion' in the hope that this is more meaningful.
Have you ever been asked to describe something only to be met with a bemused expression or a look of disbelief? I have an ongoing problem with visual disturbance, over the years I've mentioned it so many times to so many doctors, consutants etc, that I now feel like a bit of a nuisance.
Appologies for being so pessimistic but I just had to get that off my chest, and I think this is a good place to do it.