Not been on here for a long time. Feeling a bit lost at the mo. have had rrms for 13 yrs and im not recovering from relapses now and my ms nurse said it looks like it might be going to secondary progressive. I got used to knowing what was happening (well as much as you can ,having an unpredictable illness like ms) id have bad replases be ill but then gradually get better. now im not and my vision is effected and i cant drive at mo and im sooooo tired and cant help my children (age 6 and 9). i dont know how to think. Do i expect the worsed and go with my family around the world ( just an example. dont think can actually do that! lol). i am useless at the minute to everyone. Gp has given me steroids ,oral, at 30mg a day for 5 days, i normally have iv but would have to wait 4 weeks to get in, i dont think the oral steriodds are strong enough.
anyway sorry for the waffle. kelly