My husband has SP, recently while discussing symptoms with someone they reported that they could not tolerate gabapentin as it caused so many problems with balance.
This is a major issue for my husband and he decided to decrease gabapentin and see what happened. He said his balance was much better, but pain, especially headaches has increased to the point where they are not tolerable.
He is taking LDN, Nortriptyline, fluoxetine, simvastatin, and prochlorperazine, high dose vit D.
So has anyone else found this to be a problem? Any ideas for alternatives that might have fewer side effects? What he needs is pain relief without the wobbliness! Nortriptyline did help at first but does not seem to be doing much, but of course you dont know until you stop.
(MS nurse post is vacant and neuro appt. is for August).
Thanks for any ideas.