Hi LucySue and welcome to our little gang…
It’s so difficult when you have a symptom & nobody agrees what it is and if there’s anything that can help!!!
I have to say that in my humble (!) opinion, neuro’s don’t seem to know about half the symptoms we have. I am certain for instance that MSers seem to get more disgestive problems… acid etc… than others… but try and get a neuro to agree!!!
On the other hand, if they do agree that a symptom is caused by MS, they give the blurb about your central nervous system being affeced by the MS so can cause all sorts of problems!
I do get some strange feelings in my head. Fizzing in my skull and pain in my eyes even though I haven’t got (and have never had) ON. I also gets lots of visual stuff… movements in my periphery vision… I always think a mouse is running near me… lights flashing etc. Sometimes one of my ears feels numb or tingly. I also get pins and needles in my lips and tongue (oh the joys of MS!!!)
I think your problems could be MS or could be migraine (which is more common in people with MS) and doesn’t always present as a straightforward headache.
Are you on any pain drugs? I find Amitriptyline very good for pain and fizzing, vibrations, buzzing etc etc. There are other drugs as well… are you on any?
Has anyone suggested migraine?
Nice to see you on here hon and hope we can help (we are generally better informed than many neuro’s!!!)