So after a visit yesterday to my MS clinic the consultant has said theres a “hint” that I’ve gone onto secondary progressive, which I’ve already thought for about 2 years as I’ve never actually had a confirmed relapse yet my symptoms have gradually got worse.
Thinking back to my first ever attack about 4 years ago when I was diagnosed with Relapse & Remitting I never really got back full 100 % healthy, theres was always a small level off weakness in my left leg or other little symptoms hanging around, which over the years have gradually got worse and my general walking has deteriorated, but without having any full on relapses.
So anyway, the consultant has decided put me on Baclofen to help with stiffness in my legs alongside Gabapentin which I already take anyway.
As for anything to slow down the secondary progressive, well apparently at the moment theres nothing that can be offered unless there were relapses as well, which theres not, at least that’s how I understand it ?
He did say that there are trials ongoing that look very very promising but were not yet available on the NHS.
The Gabapentin I take (300ml 3 times daily) has not given any side effects, and if I’m honest no real benefit yet either, but I’ve only just gone onto the higher dosage.
So as for the Baclofen what am I going to expect from it ?
The consultant said to start on a very small dose at first because theres “a small window” where it either works or gives adverse affects such as very weak muscles, basically its a bit of trial and error to get the dosage right from what I can understand ?