I haven’t been on this site for ages I decided I really need to share some good news for those who can get it. I’ve been on Famprya for two weeks. After a week, I went for a walking speed test. Using my rollator before I did 25 feet in 12 secs, reduced to 8 secs. I can now walk around the house unaided for a while. I do 25ft in 9secs.
i had to go privately, fortunate enough to have my mum pay for it. However, compared to the cost of me losing my independence, it’s got to be cost effective. Pity NICE don’t see it that way.
i understand it loses its efficacy after 2-4 years. Buying time until HSCT is available for PPMS in the UK.
hope this is useful.