Hello everyone, add me on Facebook lee weir from aberdeen 
If you want to add a arrogant/ignoramus MS RRMMS sufferer who spams rock videoās on their wall then add me
https://www.facebook.com/hobs69
There is a event on facebook if not already joined the face of ms I am now out because of it lol
Me too - accidentally came out on āThe face of MSā on Facebook much to husbandās disgust - oops 
Worth joining the page though if youāre happy with everyone knowing
Oops indeedā¦that was my reaction when I got messages from concerned friends but hey ho Iām still the same person 
Im not out yet on Facebook, I am on twitter tho due to me knowing less people on there.
Saying that I do feel I can be myself on twitter where I canāt on Facebook, if that makes sense
Iām not out on facebook either. I have a lot of family who live all over the world so I donāt see any need for them to know. If I post a comment that Iāve been out with friends for a meal or visited them, all the likes I get are from people who know. ha ha. Itās like they are saying āā good to see you have been able to get outāā which is nice.
Iām not out yet on facebook, I donāt have a problem with people knowing but Iāve not been properly diagnosed yet, Iām sure it is MS but if it turns out to be something else then I donāt want to have to go around telling everybody itās something different.
Iāve got an LP next week and an appointment with neuro at the end of the month so after that (if MS confirmed) Iāll probably let everybody know - close friends already know itās suspected MS but nobody has mentioned it yet on facebook.
Iām āoutā on Facebook now. Some of my friends on there knew anyway so I just started referring to it in a normal way and no-one acted at all surprised. I had been posting pictures of my MS Cake Breaks for a couple of years previously so the others probably put two and two together and it came as no surprise. The ones who live locally have now seen me using a walking stick for the past year and at least I havenāt had any awkward questions. People talk so I think it was old news by the time I came out ā¦ except perhaps for the ones who live half way round the world.
Tracey x
It seems daft that some of us are reluctant to telling people about our ms, myself included. Some of my friends do know, but a lot of them have let me down & I have a lack of support, most donāt understand. I feel that the more I tell the more that will let me down. On the other hand I donāt want any fuss, if that makes any sense
Once close family knew about my MS I put it out there on facebook, with a link to this website if they wanted any information.
For me, it was the easy option and Iām all for an easy life where possible lol. I must say, I got some lovely responses. It doesnāt bother me about people knowing about my MS but each to their own opinion
Noreen x
I would say about half of my Facebook friends know I have MS - and theyāre the family and friends I also see fairly regularly so were told in person. The other half are old colleagues, school friends and acquaintances who I see less often (if at all) but like to keep in some form of contact with. One day, maybe when things are more āvisualā with my MS, I may bite the bullet, but at the moment I donāt see any reason for everyone to know.
Sorry to hear that Minnie I too donāt like fuss but Iām lucky that a lot of close friends are supportive had my first relapse 13 months ago ( was told it was a stroke) and diagnosed in February after 2 more hospitalisation which showed more lesions that were active. My family especially my sister are fantastic but unfortunately we all know about this and itās effects as my mum too is now wheelchair bound from this horrid disease.she too was diagnosed at 34 (same as me). This site is amazing for support so whether your out or not anywhere else at least anyone can share news,have a rant or ask a question here without any type of judgement
Everyone on my FB list knows and back in the day when I first mentioned it some said sorry to hear that, some asked questions other ignored it.
Now everyone just carries on posts cr ap take the ***** (extracts the urine) I fined it funny people donāt want their friends or work to know they have MS but happy to tell the world they like justin bieber, East Enders and Big Brother.
MS is not like NFU yet some like complaining on FB about their cold sores which = herpes virus.
So go figure!
I have not āoutedā myself on fb as I donāt see the point. I donāt feel MS defines me in any way. I do however, admin a little group, which we keep private, to discuss diet, scientific progress, complementary therapies etc