I work as a nurse full time. Off sick ATM.
Thanks Kit
It does seem to be a very disruptive illness!
Kaz xxx
It certainly is. My poor little boy is fed up with mummy not being able to do stuff with him x
I can relate to that.
I sit on the floor and play with my three year old, but she wants to run around and play in the garden and I just don’t have the energy very often. Luckily she has her dad and several big sisters to help out
xx
My little boy is so active and wants to go to the park to play football. My poor partner has a very physical job so is too tired to play in the evenings x
Hi Kaz
Yes I do work. I’m the Attendance Administrator at a high school, 30 hours pw. When I had the worst relapse 4 years ago I had to take a month off work and then did a phased return. For the next few months I rarely completed a full week as I found it so hard to concentrate and found my energy was sapped after a few hours at work. My employers overall were very understanding but my line manager didn’t understand it very well and we had a parting of the ways after a difficult period. I now have a new line manager and my own office so I can control my environment better ie heat, breaks and interruptions. This works much better.
The latest relapse wasn’t so bad and I worked through most of it as the steroids give me a false energy and I can’t rest on them anyway. However in recent weeks I have needed a bit of time off as my legs are still very stiff (I think I have been left with some spasticity) so I am not sleeping very well. This hasn’t been a problem as my new line manager knows that I do my very best to be in work as much as possible. I think my absence record is better than some staff who do not have a chronic condition as I have managed quite well in between relapses.
Working at a school is ideal for me as I get at least a week off every 6/7 weeks and I set that as my goal. Every half term is another achievement! The only drawback is that I can’t be very flexible with the start time as I have to be in at 8.30 so I can sign in the late students. It doesn’t work if the lady who is meant to scold you for being late is late into work herself
My son is 19 now so at least I don’t have to run around with him like I used to. If the MS had hit me 10 or 15 years ago, I would have really struggled as I wouldn’t have been able to sleep every afternoon after work. As it is, teenagers don’t notice if mum is about as long as they get fed at least once a day
Tracey x