Hi, is there anyone here who has been through the end stage of primary progressive ms with their loved ones?
My mum has been bed bound for 2 month now, and has been in hospital for 5 weeks of this due to a bed sore. Since being in bed she drastically went down hill, everything from the neck down has stopped working, shes unable to eat meals anymore, just manages to eat a cup of soup here and there, if we are lucky. Her vision has gone, her memory has gone, the delusions and confusions have began.
Today in hospital they confirmed my mum is at the final stage of ms.
But what does this mean really, what am i dealing with here? Is she dying? How long do people at the stage last for?
I know its impossible to give a a time frame on this kind of situaiton but i feel like i am living in limbo have we got weeks months or maybe another couple of years left yet.
Thanks for reading.