I have been reading many accounts of drug experiences for the past couple of days. I am at the start of my MS journey - diagnosed in Feb and just had a second MRI to see where I’m at with lesions etc. My neurologist talked about drug options last time I saw him and I am waiting for an appointment with the MS nurse to discuss further.
At the moment, I am luckily experiencing mild symptoms - fatigue, the odd pins and needles - I have worked really hard since my diagnosis to improve my strength, mental wellbeing, diet, vitamin intake etc which has helped. I know that a lot of the drugs (and the ones my dr. mentioned) have side effects - and I am conscious that I am am trying not to fill my body with junk when actually, would i just be doing this by taking lots of drugs?
Are the side effects going to be worse than my current symptoms? Are the drugs going to help me in the long term - if I dont take them now, will I be kicking myself in the future for not starting them as soon as possible?
I’m not expecting answers - just needed to vent a bit as although I have told some people, no one ever asks me how i’m doing, and I sort of feel like no one really cares, understands or actually wants to make the effort to understand which is frustrating adn hurtful and even when I try and explain, I get the impression that I’m not really being listened to.
Anyway, sorry for a moan on a Wednesday eve - complete self confidence meltdown and feeling a bit lonley!