Hi everyone.
I am dreading the day I need to ask for help. I’ve always been independent and got things done myself. I can still do everything myself, not as quickly as before but can still do it. I find that my symptoms are definitely worse the less active I am, so I try to keep myself busy mainly because if I’m busy, I ‘forget’ about the MS.
Sorry if that’s a bit random, just need an outlet where people understand.
Hi macca301180, Oh I so feel for you, I’m SPMS, straight at this 18yrs ago. I’m now a full time wheelchair user, manual wheelchair/ scooter for outdoors, need a lot of help with other things, I really don’t like asking for help, from anyone, that God for my husband without him I’d be nothing.
February 2024 I was in hospital with double pneumonia, gosh I have never felt so ill and to be honest I didn’t think I would make it, but thankfully I did. But when I was in hospital the staff had to do so much for me I felt helpless, I never thought in all my days that I would be in that position, but I was and I never want to be in that position again, it’s hard asking strangers for help, but thankfully some are willing to give it no questions asked, thank goodness.
You keep yourself as strong as you can, try to exercise as much as your MS will allow and keep as positive as you can. Sending all good vibes,
Jean x
I always say to myself “if this is as bad as it gets then I’m fine”.
It’s weird having to deal with a new normal, and human nature means we all have a crystal ball that lets us imagine about 500 different potential futures. I have carers four times a day now and can’t really do anything for myself, I try not to spend too much time grieving over what I can’t do or worrying about what the future might hold because I find it all just stresses me out and stress makes me worse. Which is easier said than done!
This forum is great for just being able to blurt it all out though, it really does make a difference knowing that people just get it.
Hi Maca
I’m new here and saw your post.
I feel exactly the same way and it’s my biggest fear of not being independent.
Worked outside since I was 18 ,worked hard for my living and eventually and got my dream job, I got paid for fishing and teaching , now I won’t leave the house on my own.
I completely understand how you feel but one thing I have learned it’s ok to not be ok
Stay strong
Colin