I’m new to the site and honestly need someone to talk to although not really sure what if anything people can advise.
Bit of background, health wise no real history of any issues, generally quite healthy. However many years ago I lost my sister to adrenal cancer she was 32. Then lost both parents to cancer in 2 years (2017/18) and then a brother to suicide (2019) . Also in 2016 I took custody of an 8 year old niece and 6 year old nephew. So a particularly stressful 8 years.
In 2019 I did develop an awful health anxiety, not that I always thought there was something wrong with me but if at anytime I was ill I would immediately think the worse.
I spoke to my doctor about this as I did recognise that is was an issue. Doctor said it was entirely reasonable given the losses I had experienced. I saw a therapist for about 6 months and that really helped.
However. I began to notice that my doctor then started treating me differently on the occasions that I did attend the surgery over the next 3 years (which was about 4 times) I’d notice he would refer to the health anxiety. I presented to him in 2020 with insomnia, mood swings , extreme fatigue and he basically said it was anxiety. Because he made me feel I was imagining it I made another appointment the next week with a different doctor who did hormone tests and declared me menopausal. So much for anxiety eh?
I hadn’t gone to the doctor since 2020 until April 2023 when I started having abdominal problems, and real sharp pain in my ovaries area and constipation issues. doctor tried brushing it off as women’s problems as I’m 50 years old. He sent of bloods which came back with several raised results specifically ca125 levels were raised (could indicate ovarian cancer) scans ruled this out. Something else was raised but can’t for the life of me recall the name but indicated liver issues (a scan revealed simple spots in liver that are apparently common but not worrying) and 3 separate urine tests showed red blood cells, and a bladder scope showed no issues there. But I still felt ill. At the same time this was all going on I started having trouble swallowing, not choking but having to forcefully swallow food down. But I didn’t want to mention it to the doctor incase he was thinking oh here we go complaining of something else. In relation to the abdominal issues the doctor referred me to gastro but I’ve yet to get an appointment.
In September 2023 had a week where the swallowing was really problematic and now I also had neck pain and mild earache so went to A&E and they kindly got me a ENT appointment for the next day. An endoscopy showed nothing grim but they said there was slight swelling and they thought it could be DISH disease. A CT scan was needed and that would be a wait of 4/5 weeks.
Since September I have also had twitch/ vibration on the right side of my face and several times when I’ve gone to turn around I’ve lost my balance. I also have like electrical jolts in my right foot but only at night. In November I woke up with numb lips very odd sensation, it was just for that one day I haven’t had it since but the facial twitch thing is still there.
Other symptoms (but these have only happened 2 or 3 times in the last few months and only again for a day was very odd eye activity. Say I’m looking at the window and then I look at the door it was like my eyes took a second to get to the door if that makes sense? Same when reading the start of a sentence my eyes will just “jump” to the end of the sentence.
Also fatigue there’s days I don’t even want to get out of bed. I do obviously but I’ve constantly zero energy.
So by December I had heard nothing about the CT scan appointment so I rang the hospital for an update. There was no update the referal had not been made and no one seemed to know where the notes were from my September visit. They were apologetic (big of them considering I’d been sat 3 months waiting) and they asked me to go back in last week for the endoscopy again. They still say there’s nothing suspicious other than my throat is on the narrow side but because the swallowing and neck discomfort is still an issue I’m to go back on Friday to see consultant on what to do next.
The more I think about it the more I’m wondering if this is not a “throat” problem but a neurological problem. But I’m anxious about mentioning the other symptoms for the fear of them pulling the health anxiety card on me. And even if I do mention it would the ENT consultant be the person to mention it to? I do not want to go back to the doctors.
I know my body and I have not felt “well” for nearly a year . I just don’t know what to do next
I know this was a novel. If you got to the end thanks for reading