Hi. I will start with my family history, my maternal mother has recently been diagnosed with Ms and my paternal grandmother has ms since her late 20’s. Growing up as a teenager i experienced headaches and eye pain which increased in frequency into my mid twenties.
I now get eye pain fairly regularly and a blurred/distorted visor in my left eye, very occasionally my right eye hurts. About 2 years ago I had strange pain in my back Running Down My spine, then my first episode of torticollis, man did that hurt. My neck all twisted to side and terrible (brought me to tears a few times), it lasted for a few seconds and occasionally felt like it locked.
The spasms where terrible. I started to feel generally weak (like everything was harder/more tiring). I would also get a tight felling across my chest from time to time, it feels like a breeze block is on my chest( lasted 10 min to an hour). This went on for a couple of weeks. I went to the doctor, feeling a little like a hyper-condriact. I felt like the first doctor laughed at me, however blood tests showed vitamin b 12 defiency.
I was put on b12 injections and told to see the optician, the Dr sent a refferal to the neurologist. The optician suspected optic neuritis after what she said is a slightly swollen retrobullbur and colour difference. She said I was experiencing pain in the other eye due to unhealthy eye stealing it’s energy? Neuro said he would contact me if there was any evidence on scan, he did suggest gabapentin and amitriptyline and said I could just be depressed. He never got back to me, so thinking i was crazy i never took the medication.
Anyway most of those symptoms went away, I had however developed an urge incontinence and my torticollis was always there, just niggling away. Got all symptoms back about a year later, not exactly the same, all a little different. Like I didn’t have shooting pains in my spine. I did not go to the Dr as I felt stupid or crazy! Now 14ish Months Later, I Have Only What Can Be Described As Sharp Shooting Pain In The Top Off My Neck That Runs Down My Spine And Into My Left Hand.
This is made much worse when I bend my head down (chin to chest), this has been here 2 weeks now and booked into Dr this week. I have had other symptoms back over these 2 weeks, eye pain, chest pain, funny little stabbing pains and a tearing/ripping/stabbing in my back. I feel tired from how much effort everything takes. I feel like no one is taking me seriously, have I lost the plot?