I’ve been made to feel ‘demanding’ (yes, almost neurotic!) and a nuisance for calling up the neuro’s secretary to ask for blood results (they never got back to me after I called either). I know they are busy, and the strain put on the NHS is horrific and unfair…so I’m not blaming them personally…but…yeah it’s good to know I’m not the only one who wants to have answers. It feels so weird to know that there is information out there about your own body, that you have to ‘fight’ to try to unearth…
How did you end up getting a second neuro? Was it through a second opinion? How did you find out if your initial MRI was with or without contrast?
Yeah, exactly as you say, it’s the ‘wait and see’, having only had the one MRI (no lumbar puncture…etc…), while having been given such a high chance of converting to MS that I’m finding hard to accept.
Thanks for making me feel less alone in this!