After about 5 years I have finally been ‘offically’ diagnosed this morning. Feeling very relived and ‘happy’ if that is not a strange thing to say.
In the past 5 years are I have 2 clinical episodes (loss of ‘control’ of right hand side of body and loss of hearing in left ear, both of which ‘fixed’ by steriods), and the 3 MRI scans I have had have each shown an increase in number and size of legions. My neurologist at my local hospital says is is ‘clear cut’ MS and no furthur tests are needed, such as lumbar puntures etc.
Everthing I read says that the sooner you start on DMT the better, and my neurologist seems to agree, but she said current NICE guidlines state I must have 2 clinical episodes within two years in order to be eligibal for any treatment. My 2 clinical episodes were about 4 years apart, so I do not qualify, so she has basically sent me home and will send me a follow up appointment in about 12 months.
Is that right? Should I be pressing/fighting for some form of ‘treatment’, or should I just get on with things and hope that either I don’t have another ‘episode’, or if I do, it happens in the next year so I ‘quality’ for treament?