Just over 7 weeks ago I was diagnosed with MS. This was a bit of a shock because at the time I did not know what MS was let alone how it could potentially affect me throughout my life. As the weeks go by I have found it harder and harder to come to terms with my diagnosis. I’m currently 25 and was told that I am quite young to be diagnosed, which could mean things affect me earlier in the future.
I understand that MS affects everyone differently but due to my nature I always seem to focus on the negatives. I can’t comprehend the thought that this is something I cannot control, that relapses will potentially come at any given moment, and that also no one knows how long a relapse can last. Currently I have experienced my first relapse for just under 3 months and it is getting to me that it hasn’t gone yet. All my symptoms are head and balance based. When I think they’re getting better, my head begins to get worse again and within a space of a few days it will be back to the worst case all over again.
Because of the above and coming to turns with my MS I am quite emotional. I have tried to read some of the MS Society booklets to help to expand my knowledge but parts will make me upset or feel down which makes reading more hard to do.
I’m currently awaiting my first NHS appointment as I was diagnosed through my works private healthcare, so I am yet to be assigned an MS Nurse. I am finding it hard as I feel like I need to speak to someone about MS and my symptoms and just everything MS! I have been to my local MS Society Branch drop-in session but found that this wasn’t what I was seeking. I am able to speak to my girlfriend about it all and sometimes my parents/friends, but they all however much they try don’t always quite understand how I am feeling.
I have also been informed that there are lots of what are labelled as ‘Young MS’ groups for individuals around my age but I am currently struggling to locate any of these online and in my area (North East Essex).
If anyone has any advice or tips which they believe will help me with anything I’ve mentioned above then I will more than appreciate it.