Firstly I am local to you and am under the care of a ms consultant at the RVI. I was also diagnosed with transverse myelitis in December 2016 so understand your dilemma.
As said already TM can be classed as a CIS in some people, however I had opthalmic neuritis many years ago so TM can also be an inflammatory event at any stage.
I understand that your third MRI scan aided the diagnosis of TM. If it is helpful I can vouch for the development of inflammation in the spinal cord over anything from days to months, so can understand how the changes in your MRI can change the name of the diagnosis.
I can also add that I had a kelidoscope type visual change at the same time as my TM, there was also some inflammatory lesions seen in my brain as well as cervical and thoracic spine at C2-5, T1 and T5 which caused many neurological and mobility problems.
Did they tell you what was actually seen on your MRI’s, that might be helpful for you to connect the symptoms that you have had?
Have the neuros arranged any follow up? Have you been referred to see a MS consultant? At the RVI they are neurologists who deal only with MS patients, whilst other neurologists will treat a CIS and not necessarily refer a patient to their specialist colleagues.
I’m sure your MO will be understanding, (I’m also retired military) and should be able to refer you to one of the MS consultants if necessary.
There are MS nurses, who are part of the MS team at the RVI, to whom you can talk too, you can self refer. Their phone number is on the NUTH website. The admin will take details from you, but be sure to ask for one of the MS nurses to call you back whether you have been referred to the MS team or not.
I can say that I ended up having two lots of steroids 6 weeks apart and was then put on a DMD. Here we are six months later and I am so much better, so keep your ‘pecker up’ and good luck. I hope this information is of some help to you and if you feel your symptoms are getting any worse then ask for a early review at the RVI.