Hi all, I’m new to this so please bear with me re questions etc.
My problems began after the birth of my child last March. I had a great birth no issues yet felt shocking . Constantly tired and very weak … To pick the baby up I had to lean on a wall. When I stood up I walked side wards like a crab… So bizarre . I knew people would put it down to birth so I conducted my own research and just knew it was Ms related. I even voiced this to my partner, I knew of no one with Ms but knew something was seriously wrong with me. It reached a crescendo in August last year when I became fully paralysed from the neck down I could do nothing but scream . I was hospitalised and an MRI discovered a large mass/lesion measuring 3 inches, hence why they thought I had a brain tumour . Lumbar puncture ensued and the fact that I responded well to steroids suggested inflammation as opposed to a tumour so I was diagnosed with clinically isolated syndrome. If I had another incident such as this one I would have tumefactive Ms. I know of one other lady with this. Does anyone know of anyone with clinically isolated syndrome with a lesion this large? I am still suffering the effects but as someone has recently pointed out this can take about a year. I still have continued pins and needles, my right hand side even my breast and bum are numb and I feel as though I have been permanently attached to a drill and then let go so I feel as though I have a tremor or vibration within me permanently!! I feel the odds are high that I’ll get Ms but I constantly worry that my brain won’t take many more tumour sized ones… I know of only one lady who has 4 but can I die of this if a do get the tumefactive one and I continue to get lesions. .? Sorry for the 20 questions I feel I have no where to turn as the size of the lesion was so rare and large, hence causing my paralysis.
Thanks in in advance and sorry for rambling.