Good morning all. I’ve just received the letter from my neuro confirming that I’m now SPMS. No surprises and this was discussed when I saw him last summer and at my consultation about a month ago.
He suggested that I would be a good candidate for the MS-STAT2 clinical trial of statins. I did email him after my last consultation asking whether I could not just go on the statins anyway rather than be on the trial - where I might not actually get the drug, but a ‘dummy’ one. I’ve seen that some people have been put on high dose statins by their neuros, presumably when preliminary results about their efficacy came out. I haven’t had a reply from him yet and haven’t chased it.
I received an application from the hospital about going on the trial, but didn’t do anything with it as I was undecided.
Part of me thinks that I should apply for the trial - the neuro said that the care and checks are very good on these - and be a bit altruistic, but the other part thinks that I should just be self-interested and push to go on the statins anyway.
Any advice from you wise people? Thanks.