Hello everyone and thank you in advance for reading and commenting.
I’m 42,male, and started having symptoms since 3 months. It started with pain in the back of my ears that extended to my jaw (trigeminal neuralgia?) . Along with that brain fog. A few weeks later burning sensation in feet and hands. Now stabbing pain (few seconds) almost everywhere and muscle twitching. Everything gets worse everyday. Before this I have always been healthy.
I had already a brain MRI as well as from neck, thoracic and lumbar spine (I’ve been having some back pain as well since about 6 months) right at the beginning of my headache 3 months ago. All are clear.
Question 1. Do you think the MRIs were done too soon (before the neurological symptoms) for them to show lesions?
Question 2. Do the symptoms sound like PPMS to you? I think it fits to my whole situation but neuro say no lesions no ms, almost by definition.
Question 3. Any advice what to do? Should I push for a Lumbar punction?
I don’t want to sit down and just see how my symptoms get worse, thinking it might be PPMS progressing.
Thank you very much for taking the time to comment. I hope you all are doing OK today.
Well, yes, ‘Multiple Sclerosis’ means ‘many scars’. Only one scar (lesion) also means ‘no MS’ by definition, as I remember the neurologist telling me at the time of my first relapse, but more followed soon enough in my case.
There is a risk of becoming so convinced that it’s MS that one neglects other options and ignores contrary evidence - it’s just human nature - but your neurologist is trained to be more systematic, and that’s what he/she is for. Whatever is the matter, I hope things become clearer soon.
Thank you Boudsx,
I have read some of your posts. They are very helpful and make me trust my instinct even more and continue pushing for answers.
Take care!
Hi, thank you very much for your reply.
Indeed, I think that my suspicion for ms increases everyday due to new or worsening symptoms.
I want to trust my Dr. However, there are so many cases of neurologists not giving the right diagnosis (specially for ppms) where they underestimate the patients symptoms…I hope he is right but I will try to get a second opinion, maybe from an ms specialist.