I’ve not been on this forum for quite a while now between one thing and another! But here I am again, this time with a question. I’ve been on tecfidera for the past 10 months but I’ve had two fairly big relapses since then. One around February for which I was given steroids and the last one started a few weeks ago for which I was offered steroids, but because I know now that they wont change the ultimate outcome of the relapse, I thought I’d try to push through this one without them. (not too sure if that was ‘fool hardy’ but if I really feel the less chemicals I put into my system the better?
Anyway, because of the two relapses while on tecfidera my Neuro explained that it may be good to change from it and go to either Tysabri (depending on blood tests for JC virus) or Gilenya. She explained the side effects of both drugs and gave me information on them too. When I look at the info on them, I feel really nervous to go ahead with either of them to be honest. I looks as though its a real gamble. Really not sure which way to go. Has anyone got some experience or advice around these meds?
Also, has anyone decided just to go it alone? maybe with special diets or complimentary therapies?
Thanks for reading,
Enjoy your Sunday!!