What do you do when you really cannot pick a DMT.
My symptoms are very mild at the moment but of course, that may not last.
The MS nurse has just called me. As it has been nearly a year since the last brain mri I asked if I could have another one.
But he said they normally do not do until you have been on treatment for a while but will ask.
I am thinking of brayia (copazone), Vumerithy or Aubagio
If no activity maybe brayia or Aubagio or if no lesions Vumerithy
How did you pick your treatment?
Personally, I have always gone for the most effective treatment offered to me.
I can really understand that, but not sure if thats the way i will go.
sadly that is a million dollar question. Everyones MS is different and we all react to meds in different ways so without 20/20 foresight or hindsight very difficult to give a good answer. Personally I don’t seem to react to meds so I asked for the most powerful. It is an individual choice, all you can do is gather as much trust worthy info, speak with experienced professionals and decide your priorities and take a punt. Sorry if that is not helpful, but I do wish you all the very best whichever you choose.
Mick
Thank you for your reply. It has been helpful. At the back of my mind i think i want to try brabio but i know its not the most effective, BUT it could be for me. Nobody know what will suit me better
I was offered three, Ocrevus, Tysabri and another that I can’t remember the name of. The nurse said she felt that Tysabri was the best available right now and the right choice for me. She also said if she were in my position, it’s the one she would pick. That was enough of a recommendation for me.
Not massively helpful, but has any been suggested to you?
Jx
Hi Foxy
None of the above as been offered to me. They only offered first line. i believe because i have only had one attack. I have been labelled benign MS! / Cis with positive lp / rrms they keep changing the tittle. But they think only one attack but can say ms due to positive LP
Get as much advice as possible about the ones offered to you (which actually is what you are doing by posting here!)
For me, starting a family in the near future is very important so I chose copaxone initially as it fitted my needs the most. I soon got used to using the auto injector and eventually was able to look my sharps bin in the eye (I was really weird about it for months!). Unfortunately I had a bad (and very rare) post injection reaction so I had to stop taking it after 8 months.
I then went to tecfidera - I personally didn’t have any of the known side effects (flushing etc) and it suited me really well. However I’m currently off my meds as my partner and I have decided on a ‘wait and see’ approach to pregnancy rather than putting the pressure on to ‘try try try’. I’ll be going back to tecfidera when the time is right.
Take as much advice as you can, as we all need different things from the same group of meds! Good luck with your journey x
Funny you should say that about Tysabri. I have also heard a medic say it’s the one he and his team would want, were they to be in our shoes.
I only skipped first line because the two MRIs I had that were 9 months apart showed that my MS had remained active in that time and new lesions had also formed. They felt an aggressive approach was needed to put out the fire, so to speak.
I just meant that, from what I gather, you are given a few to choose from that they feel is right for your MS, then you choose the drug that is right for your circumstance.
Jx
That was enough of a recommendation for me! What’s good for the goose!!
Jx
I heard this too from medics, however as with all drugs there can be side effects and risks, so I went through with a fine tooth comb and made my best guess choice. 
Absolutely. They pick a few based on their expertise and you choose the exact one according to your personal circumstances/thoughts. I think that’s a good way to work.