And standing is worst of all… I can run a half marathon but I can’t attend a concert. Different for me as it’s hypermobility (EDS)-induced, but I’m amazed I’ve managed to do this much and I plan to keep it going as long as I can. Going to physio changed my life. I hoped it might make me “normal” - not quite (cheap standing tickets will never be for me) but how many “normal” people can run 13.1 miles?
The answer to david’s original question is actually very simple: it’s the eyes.
When you are moving fast, the change in the flow of information coming through the eyes to the brain is more important than almost anything else. Go slowly and the rate of change in the information slows down as well, and other parts of the body and brain take over the balance function.
I noticed the effect at the onset of my TIM, and said so to the neuro I had seen privately. He had never come across the effect - but then his doctorate was in medicine and mine was in human vision.
Geoff
I so glad I’m not the only one with these sorts of weird goings-on.
I can dance for 2.5 hours - I even did a dance fit class for that long for charity. Set me off on a waltz and I could go forever with my whisks and weaves and chassis and spin turns, natural and reverse turns … foxtrot, quickstep, square tango, even cha cha cha and mambo.
Took myself off for a walk on bank holiday monday, was out for 1 hour, only did 2.5 miles and over a week later I am still paying for it, the last 0.25 of a mile was done on sheer angry, frustrated pig-headed stubbornness. My left leg is so hypersensitive that getting out of the car is like electric currents running through my thigh and I’m off this afternoon to see my MS nurse. Walking is still a problem but I can dance (although I’m missing out the Cha cha cha, I don’t want to push my luck). Last night I did my lessons in slow foxtrot and argentine tango for an hour.
Ain’t the human body a strange thing
JBK xx
I am still here - still running and cycling.
Trying to develop a new running style as I have started tripping regularly, for no apparent reason, and fell over recently.
Walking has got better on the flat and uphill - but downhill is sometimes almost impossible - it’s weird!
But overall very grateful 
Best wishes to all
Doc G.
OK, so when I walk I have a pronounced gait, but when I do the very slow movements of Tai Chi everything works smoothly and accurately.
The only thing I can think of is that I only took up Tai Chi after developing my PPMS and that the neural pathways I use for this particular exercise is different to the one I learnt to walk with.
Anthony
I play hockey (the on ice version) and i lift weights. i have always loved and enjoyed doing both, occasionally to the point of injury! (A fine line exists between a healthy habit and a damaging addiction. but anyway…)
My the point is, i ALWAYS feel better afterwards. if life conspires against me and i fail to indulge either of these two passions, my legs start to feel a little ‘buzzy’.
Sometimes, after a really good skate, one of my feet can ‘burn’ like a right bugger, but as a whole, i feel fantastic!
I am hoping that the pursuit of these sort of things, whilst clearly contributing to a positive mental health, also utilise those parts of the brain; motor function, fine movements, balance, etc which can often be compromised by MS.
I also wildly hope that the reason neurologists understand relatively quite little of what the brain does, is because it is constantly using, destroying, replacing axons and neurons etc whilst we push ourselves to complete the mundane, every day tasks of life.
A US chat show host called Montel Williams is quite an outspoken advocate for MS and the legalisation of medicinal cannabis. he is also a big fan of snow boarding. he claims that he can be drop footed and staggering up until he straps on a snow board. then he can spend an entire, exhilarating day on the mountain and then find his usual symptoms have subsided for at least a few days after.
Ice hockey and snow boarding are not available to everyone. but the compulsion and i hope the motivation for everyone to do everything that they possibly can, for as long as they can, should be there. you have got to use it whilst you can, whatever that is.
to the OP… keep on running!