I had my first appointment with a neurology consultant today.
I have been experiencing many symptoms which are similar to those experienced by those with MS. Tingling in arms & legs which have now morphed into very stiff arms, problems with my hands, numbness in my feet, memory problems, pain under my ribs etc.
The neurologist took my history did some reflex tests on my arms, legs and hands and then said that I had nothing wrong with my nervous system and that I had a functional disorder (medical condition that impairs the normal function of a bodily process, but where every part of the body looks completely normal under examination). which would go away in time. I’ve been having current set of problems for nearly a year.
He asked if I was happy with what he told me. I explained that I had undertaken some research into my symptoms and was not happy with his conclusion. I explained that there could be a number of causes for my symptoms including MS, and that I felt an MRI should be carried out on my head and spine to rule them out. I said that my symptoms are having a significant impact on me and I want to get to the bottom of them.
He agreed to get me booked in for a head scan only. He said I wouldn’t be able to keep still for long enough for a head and spine scan, and that he wouldn’t be able to get permission for more than a head scan.
I’d be grateful if I could have some feedback on the following:
Was it the right thing for me to do to insist on a MRI, or are reflex tests sufficient to rule out MS. If reflex tests are insufficient then why was a functional disorder diagnosed?
Should a head MRI be sufficient to pick some signs of MS, which would then point to a need for further MRI scans, or might a head only MRI result in a false negative diagnosis.
He advised me that it will take up to 6 weeks for an MRI to be arranged and that I will then need a further appointment for the results.
- Any suggestions on how I should approach the next appointment?