I was diagnosed with ‘probable transverse myelitis’ in Feb after a MRI showed a lesion in my cervical spine (I’d gone to the GP twice with strange sensations / heat insensitivity in my hands/fingers; she referred me directly for the MRI to check for disc issues, and the MRI finding led to my referral to a neuro).
Neuro sent me for brain MRI which has shown “more than 9 T2 weighted lesions” in different areas.
My GP phoned me with this news and basically said it’s pointing to MS - she was talking as if this gave the diagnosis, although the neuro’s letter did not specifically mention MS, it just gave the facts.
My next appointment with the consultant is on 8th May - despite the GP’s confidence, I suspect the neuro will not diagnose MS there and then as I’m not sure I fulfil the ‘dissemination in time’ criteria, so I guess it may be classed as CIS and he may want to wait and see, or do another MRI in a few months to look for any changes. (My brain MRI was done without contrast).
I don’t particularly mind waiting, although in a way it would be good to have a definite diagnosis so I feel I can move forward. Just wondering what I should be expecting from the neuro when I see him in May (e.g. a ‘let’s wait and see’ or ‘let’s do more tests’)…
Thanks for reading