Cocochanel. For about 6 years I have been suffering with progressive disability with regard to movement, stiffness, and lack of balance co-ordination down my right side. 6 years ago I could run half marathons, just. 4 years ago I could only run for about 3 miles (yet was easily able to ‘row’ for 10!) and 3 years ago I couldn’t run at all and still can’t.
However, I’ve never really been in any ‘pain’ (apart from when i tripped over running and broke a finger, or slipped and fell whilst out shopping on a paving stone raised only about 1cm!). This is what makes PPMS different from RRMS, and the overwhelming bulk of people/posts on this part of the forum are RRMS sufferering related. From what I’ve read of RRMS, it is often characterised by a lot of painful episodes of some intensity. Not so PPMS, at least not for me anyway-not yet.
No doubt it will all change in time, but the reason I’ve been diagnosed so late on is that I only really felt the need to go to the GP in November last year when the private physio I booked myself to see (assuming I had some sort of complex sport-related muscle/ligament issues) suggested, in no uncertain terms, that I really needed to do so and would be contacting him that day; she is an excellent, highly recommended physio and I guessed I needed to follow her advice…so here we are now.