I have appointment at Kings London this Wednesday and
Just wondered what people are being offered theses days for DMD’s. Ive recently had triple MRI and results for brain a concern, my local consultant has left to join another hospital, so my nurse has made appointment in london. She thinks may change my DMD?..
Many years ago i was started on Copaxone, for only 12 months, the there was Betaferon, and finally Tecfidera, some 7 years ago. Just wondering what drug could be next?..
Have a look at MS Decisions aid | MS Trust The category 2 drugs would probably be what you could be looking at next.
Tysabri maybe? Lemtrada?
Best of luck
Consultant was very good at kings, and filed me full of confidence, and yes very quickly said i needed Stronger drugs sometime soon. He having meeting this tuesday with other Neurologist to see what they all agree will be best. i think Lemtrada was metioned, but he dint think as strong as needed for me?, i cannot recall names of drugs needed but one option was a monthly injection that stops 70% of hits, and other option was a 6 monthly infusion that stops 80% of hits. Nows just a waiting game.
i was concerned my consultant in MEDWAY has moved onto to a new hospital, and what was i to do?.. he said your now my patient!!, so a win win!!
It certainly sounds like you’ve landed on the list of a good consultant. Kings Hospital have always had a great MS clinic and specialists.
Was it Tysabri? I’ve been on Tysabri for 10 years and it’s been a wonder drug for me. I had been on Avonex for 10 years but my MS overpowered it after about 7 years. If I had upgraded sooner, I might have dodged some very nasty relapses in my later Avonex years that left permanent damage. The sooner you can get on a drug that keeps your MS in proper check, the better.
I think he wants me on drip drug twice yearly?, Tysabri is a monthly drip isn’t it?.. As it stands nothing confirmed until specialist meeting next week. How are side effects for you?..
No side effects to speak of of. Good luck with whatever high-efficacy drug you go for.
Thanks, I will let you all know when i do what drug has been decided for me…