Antibiotics in MS

Everyday living
22

Hello carrot cruncher.

Yes i am in Canada and have become Canadian. I have grown to appreciate very much, the quasi-socialised health care system over here and i feel bad for those in the UK who are desperate for assistance but are constrained by conflicts of interests.

The ‘wait and see’ strategy makes no economic sense; why treat the symptoms when you can help undermine the establishment of the root cause?

The NHS was supposedly on the verge of collapse for the decades during which my Mum endured her set of MS circumstances. Sadly for her, the ‘wait and see’ approach was unavoidable, as few if any DMDs actually existed.

Perhaps it was from my being a forced spectator of my beloved Mum’s decline into complete disability and dependence, that i am so adamant that each and everyone of us should feel obliged to do everything possible to ward off the next relapse, no matter how slight the probability of another relapse might actually be.

And for this, i would ask you to leave making excuses (budgetary limitations etc) to those who are paid to worry about such things. Frankly your MS nurse, your GP, your neurologist and YOU should all share just one concern, and that is ensuring an absolute optimum health and positive prognosis for you.

Demand a DMD. It is an investment. You are worth the expense. You really do not want to wait until it is too late. If you have been diagnosed with RRMS, i would suggest that you have the right to acquire the appropriate medication.

If you will not fight for your own best interests, then who will? The very best of luck to you.

(My being in Canada does not invalidate my opinion.)

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23

‘Wait and see’ is unfashionable - that’s for sure - but there are worse things to be, and a medical advisor in whom one has faith is worth a lot in its own right.

My RRMS was aggressive from the start (1999), and I am fortunate that I had a neurologist who got me on Avonex at the earliest opportunity and helped to limit the damage - I’ve been in enough trouble since then without having invited worse by wasting time faffing about with ‘wait and see’. But things might have felt very different if my MS had been less frighteningly active back then: we all have our own individual experience, and our views will, inevitably, be coloured by our own stories.

What I would say is that the arrival on the market of many new therapies for RRMS, and the track record that existing therapies have built up in the 15+ years since then, does seem to be making early intervention a more and more compelling approach. Not the only one, but one with an ever-increasing amount of evidence behind it. No doubt there are still some young-ish MS specialists who still favour ‘wait and see’ routinely. But I suspect that they are a dying breed.

Alison

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