Am not yet been diagnosed but have all the symptoms the pain the double and blurred vision the tremors the fact that my undiagnoses triggered anxiety levels to most intense levels is scary yet when try to get help no one believes me or wanted to ever listen to me it’s like am invisible but I am real the symptoms and pains are real am telling the truth yet no one listens or believes me
Hello,
Welcome. Being anxious probably exacerbates MS symptoms. I believe you. Neurology and Ophthalmology assessments sometimes take time to dx MS. Hope you receive some sort of treatment for your symptoms soon.
Best,
JP
Have you had your high-street optometrist examine your eyes? They know what to look for.
It’s depressing when trying to get someone to listen so get help with it and no one wants to listen
Yes that could not find anything but being referred another specialist as want second opinion I know there’s something there but what the cause is am not sure but I trying to get neurologist appointment but it seems some people in this world just don’t want listen to me keep hitting a brick wall every time what get to see someone
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OK, well try not to panic. It’s good you’ve had your eyes checked out to exclude things that potentially demand urgent attention. Who has referred you for a second opinion and what kind of specialist?
A eye specialist and an being referred by first eye specialist but as am for neorolgist I think because the two maybe linked
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That’s good. Sounds as though you are well and truly in the system.
I remember Optician wrote me a letter to give to GP, after I temporarily lost vision in right eye, due to optic neuritis.
GP then referred me to Neurologist for tests. I know it must seem you have to jump through hoops to get the help but, you’ll get the MS treatment eventually.
Initially I opted for homeopathy to treat my MS, which worked out quite well, until the horid disease returned a number of years later; just don’t give up hope.
Yes in the meantime it’s frustrating and depressing and with tremors coming on suddenly and vison issues that come and go with single warning
Thanks I read that some advance versions of ms trigger the nerve eye condition in some people but not everyone and also condition that effect the eyes I randomly see things that not there but it’s brain trying correct my vision which good some cases I see the brain is trying to help but in this case it is not and make things worst I partional depth perception problem which seriously problem when can’t rely on my own vision to get around
When you say no one believes you, what medical appointments have you had so far? Also, I’m no medic but where and how often is the pain?
My diagnosis came after a visit to outpatients when I lost vision ( near total loss) in one eye, an examination of which showed optic neuritis and from then I got an MRI scan.
Well some of doctors I have seen haven’t been very helpful and but the current doctor I seen of recent have been great and has referred to neurologist so get scans done but also waiting to seen second eye specialist for eye related issues but as doctor agree the issues may be linked so they forward notes to neurologist as but as for my vision like rest of it comes and goes but as for pain when it’s present it can mild to severe and last days then others days it’s not bad or even no pain but still get the eye pain almost every day and get double ans blurred vision couple with depth perception issues which frustrating and of course my other health issues can’t take pain relief as can’t swallow pills I have to use creams which isn’t that good … But because of allergies to some medications the doctor is still trying to look in find some can take maybe in liquid form and past doctors never believed me but my doctors surgery reassured me that this won’t happen again and doctors from that surgery no longer work there but since went to see doctors last they all have listened to me and now waiting on my referral process soon we shall see
I don’t think I had any significant pain in my eye and the vision returned slowly of its own accord ( as did the ‘colour vision ‘ which I lost in my right eye). I never suffered pain of any significance except more recently and since I developed ‘spasms’. Good that you are getting referred ( could you try crumbling pain killer tablets into water?)
Cheer and I been trying all sort of ways to take pain meds but just doesn’t work but am hoping there be liquid one soon in mean time got the cream but also feeling tried all time and oh eye pain is so bad feels like some ones given me two black eyes but it’s feeling everyday like got fresh two Black’s eyes on wake up kind of pain but not actually black eyes as there nothing there just that kind of pain
Yes I’d say optic neuritis is painful if not sore, at least. After all, the optic nerve is inflammed as the condition suggests.
Since having the full sight loss in right eye previously, I notice the pupil is now slightly larger than the left one;
I get occasional pain and double vision behind left eye so maybe both pupils will equal in size eventually.
I must say, that’s a very good description of optic neuritis as I have experienced it! Which isn’t to say that’s what you’ve got, of course - only the doctors can comment on that - but that certainly is what ON can feel like.
Yes am not sure myself but it comes and go but doesn’t seem to stay away for long and has my doctor suggested that m.s effects bodys nervous system it’s quite possible it includes optic nerve but also sensitive to bright light and problems seeing in the dark too which starts bout a month ago the sensitive to light I mean now my head is sensitive but my head has been like this for many years
Any part of the body that has a myelin sheath wrapped around it is susceptible to multiple sclerosis.