Hi all,
It’s been a while since I last posted. In the meantime I’ve been pulled off Rebif after developing antibodies and the docs pretty much ruled out any other interferons after that. The only option left for treating my RRMS was Copaxone. And they do want me back in treatment ASAP due to active lesions flashing up on the MRI. But wonder of wonders I actually got a new neurologist who saw me as a person and not just a number in the system. And he actually listened and understood when I explained the looonngg story about my needle phobia. Fast forward and the docs have made an exception to the guidelines for our area and have agreed I am a candidate for Gilenya.
I’ve researched around the net about the pros and cons of it, especially side effects. But I’m just wondering if anyone has any advice on what questions to bring up with the doc when I meet him to discuss starting this new treatment? Obviously I’m concerned about compromising my immune system to tackle the MS so I want to know how best I can keep myself healthy otherwise. But maybe there’s other Gilenya patients out there who have some queries that they wished they’d brought up with the docs before starting treatment?
Thanks for any input!