Hello, I am new here and looking for some advice please. My mum is 78 and has Primary Progressive MS. Dad is 81 and her full time carer. I am trying to find out about all the professionals that should be involved please.
My mum only has a telephone call with the MS nurse apparently every few months. Each time she phones my mum answers questions but then tells my dad she wasn’t sure what she was saying. The OT has now been replaced after an 18 month gap (I phoned up to ask to speak to her and was told she left 18 months ago). She came out unexpectedly when I wasn’t there and doesn’t seem to understand. She ordered my dad a lifting contraption that was no good for my mum as she cannot stand or bear any weight. This has since gone back and a further 2 have been brought…again all unsuitable. The final one is great and helps lifting from chair to bed but we can’t get it through to the toilet as it is so bulky.
I am really concerned that my dad can no longer cope. My mum is self catheterising and struggling to do this. My dad is sometimes unable to get her on the toilet in time so she then has accidents.
I don’t know what to do. Do I ask for some sort of assessment? How often do you see professionals face to face?
I will need to be at meetings and telephone calls in the future as my parents are struggling and I don’t think the severity of the situation is getting across.
Should adult Social services be involved?
My dad was put in touch with a local carers group but they meet for a coffee once a month and just chat.
As far as I know that is it. Dad said he would cope better if it wasn’t for the toilet situation. They would be able to go away and have a much needed break. Mum is absolutely devastated when she has accidents especially in my car when I transport her. She is starting to not drink enough for fear of it. I am absolutely heartbroken.