Thank you for commenting and the link 
as you can probably tell im new to this so i have no idea what im doing! No lumbar puncture as my neurologist says its not needed so that may be a good sign? I dont know x
Very useful this info on the brain.
I had symtoms 8 years ago…lumber puncture was done…nothing found! But 2015 after optic neuritus in one eye it was looked at again.it takes long time to get a firm diagnosis .its a worrying time not having answers too.mri s done finally showed some white legions so no doubt then for me .i think no lumber punct does seem a posotive sign as they do it to rule it out
Tp all you new folk - you are sticking new queries onto a “sticky” - which is an information post. As suggested above, do start a new thread to get more answers,
Note that a lot of “experts” are abandoning the McDonald Criteria for first diagnosis.
In the MS, a VEP (Visually Evoked Potentials) test confirming Optic Neuritis is enough for a Dx of MS.
This can result in quicker treatment (like a DMD) than going the McDonald route.
Do note that a Lumbar Puncture can only confirm, it should not be the only diagnostic tool.
Of course you can have symptoms (pain, numbness, etc) on both sides - this is a good clue to Transverse Myelitis which is usually a precursor of MS.
You may be left with a symptom on one side - dropped foot is typical - but that could be month or years down the line.
Geoff
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I have a few questions…i was diagnosed with Addisons disease 2 weeks ago. I have some things that seem more like MS though. Random bouts of inability to walk and tremors when I get even a slight chill. A lot of symptoms overlap with my type 1 diabetes and RA. Like neuropathy, not sweating at all, fatigue, insomnia the list goes on and on lol. Anyone else here have these issues?
Hello
A close family member who is only 18 apparently might have MS. I am really shocked as I thought (and through the various web sites) that MS diagnosis is only made after eliminating other diseases/conditions. His B12 is low and he has had one MRI scan of the brain and is having another one on his neck very soon.
I have heard that a vegan diet but with fish (figure that one out!) is a good way to help. What could we do to give him the best chance of coping if it is MS?
My greatness concern is that he already has special needs; its seems so cruel to have even said anything until they were sure. Is this standard practise?
Advice or pointing me to previous posts would be most welcomed.
Thank you.
Hi RTLF - your correct about the diet - check out https://overcomingms.org/
It works and although not clinically proven is verified by medical evidence.
all answers to any Qs should be found on the website and its forum.
all the best to you and your family member x
hello everyone, today I finally received my diagnosis from the neurosurgeon at the hospital. He said it was MS , to be honest that was a bit of a surprise to me, I wasn’t expecting that, I was and I wasn’t. Thinking about it now it kind of makes sense, he thinks that maybe its been undiagnosed for at least ten years, thanks to the MIR scan, he showed me all the pictures from the scan and the decay to the nervous system, he did say it was difficult to read but you can see that there is damage there, I am happier , if there is a word to describe this then I AM HAPPIER knowing that i have a condition I can work with,I didn’t know this before. This is all very new to me as i was only diagnosed yesterday 05 September 2017. At the moment I can only walk with the use of crutches, my balance isn’t very good, I have a tendency of falling over a bit but I am only walking about without my crutches only in the house. Also I told my local Gp aout my new diagnosis and he signed me off work for 3 months. He was very apologetic to hear about my diagnosis. Like i said it’s all new stuff for me. THe first thing I did was come here. Its going to be a new adventure for me I am sure. Doctor seems to think it has been undiagnosed for years.
Hello, Karen. My name is Margaret. I have had different problems throughout the years related to excessive fatigue, remarkable inability to tolerate heat, numbness in my left hand, fingers, left leg, and hip. I have urgency too, as well as constipation. Too, depression, weakness in my arms and legs bilaterally. I get spasms in my left hand, fingers,both feet , legs, I have a vibration like feeling down my back and into my legs,etc. my eyes have also on two separate occasions demonstrated with aching with movement, and too, diminished color perception. My MRIS over the last thirteen years, five of these have shown firstly just a few peri ventricular plaque lesions several years ago. My latest MRI this past September showed in excess of fifteen plaque lesions on my brain, several of which the radiologist stated presented as being perpendicular to my lateral peri ventrical areas of my brain. The radiologist stated that there though were not presently active lesions. My neurologist has had me on Copaxone Injections since 2005. I also take Ditropan for urgency, a stool softner, per constipation, Baclofen for spasms, Neurontin for the vibration like feeling, and I take Provigil for fatigue. My Neurologist diagnosed me based on an EMG, that showed Slowed Firing Rates, Hyper Reflexia bilaterally of proximal / Distal Extremities, Hx. of Optic Neuritis, x 2 episodes, a Spinal many years ago that demonstrated Bands, and now five MRI Exams which show High Intensity Foci in areas specific to a Diagnosis of MS, with Multiple Sclerosis. He has kept me on Copaxone per the fact that I haven’t shown tremendously increased areas of plaque on my MRIS, combined with the fact that I do have symptoms, yet not new symptoms of recent years. Does this seem like a proper diagnosis, testing protocol and too, treatment protocol to you, Karen. Thank you. - Margaret O’Neill. P.S. He said other things about my symptoms and too MRI Results that I do not remember right now, Karen.
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hi ive just had a letter dont really understand. short version is. there is a minor loss of intervertebral disc hydration throughout the lumbar spine and there are some focal dots of increased signal hyperintensity in the posterior annulus at l2/3 l3/4 and l4/5. which may reflect an annular test. any ideas appreciated x
Im not diagnosed yet. I have demylanation in several places in head including corpus collosum. Does this mean i have ms?
THANKS VERY MUCH FOR ALL THE INFO ABOUT THE BRAIN VERY HELPFUL. THANKS AGAIN.
My 15 year old had an mri after suffering from a continuos headache for nearly a year and a half now! she has dizzyness, tremos, fatigue, a swinging gait, confusion, very hard to sleep, not eating properly as feels sick, pins and needles in her fingers and her left side goes numb sometimes, the MRI stated that she has a 6mm well defined focus of T2 and FLAIR signal intensity in the posterior part of the right thalamus, does this indicate MS
I take the same medication as you. I am working, and get no help at all, I have to pay for my medication, and this really pisses me off. My memory is going and find it hard to concentrate and I am making mistakes at work, I am going to end up with the sack at this rate. I drop things, cant find my words, type back to front. This is affecting work so much now, I can get help at work, but how long are they going to put up with me, and I am agency at the moment. I need to see my doctor, I have told him about my memory and things and he said we are all like this with getting older. No its not, its the MS.
Humans have evolved to have a lot of brain matter, so the only way to fit it all into the skull is to squeeze it together, like squishing up a piece of cloth to fit it into a tight space. This means that the cerebrum has lots of folds in it. The bits that go in are called sulci (a single sulci is called a sulcus) and the bits that go out are called gyri (a single gyri is called a gyrus) and they all have names. [Mammals that aren’t as intelligent as humans have smoother cerebrums, with fewer sulci and gyri, if any.]
Hi all, Just after some advice I have just had my scan results back and didn’t really get any explanation from my neurologist he just referred me on to another The report reads Lying adjacent to the body of the lateral ventrical in its posterior margin is a flame shaped area of T2 signal There is a similar but smaller area of signal change lying adjacent to the left front horn. The two areas of high signal within the brain have features very suggestive of inflammatory demyelination Any idea at all what this means, iv just got this price of paper (MRI report) and a referral and I’m worried, does anyone have any idea what it all means? Xx kita
Thank you I’m new to the group & my MRI was today, I’m still a little lost in all this as my GP sent me for an MRI in the hope of ruling out anything sinister & told me I could have MS this has come as a total shock however reading this post has given me an insight as to what MS is thank you Karen Bevsie X X
Hi Gary I’m just going through the same thing I got rushed to hospital with symptoms relating to a stroke once in hospital & after having tests on the ward I was told I had gone through 2 TIA small strokes I was then given a neck scan to check for blockages in the neck & then placed on Clopidogrel blood thinners & 40mg Atoravastin & placed under a stroke consultant for follow up appointments .in the meanwhile I began to get worse dragging my right foot dropping items with my right hand & pins & needles in my right side of my face …my visions very blurred although my recent eye tests say my vision is great . I’m very fatigued all the time. I have pins & needles in the top of my head & my whole right side of my body feels strange …I’ve become very confused & can’t swallow properly …which is strange because the swallowing started before the strokes … I’m under a throat specialist for my throat … on my last visit to my doctors I had to see a different GP as my regular GP was on holiday he looked at my notes & said all your symptoms relate to MS I’m surprised no one saw the link . I would just like an answer so I can get on with my life, I feel so alone in all this that’s why I have come on here to talk to people who would understand did you have an lp ( lumbar punch ) to get your results & answers .
thank you Bevsie x
Hi, do you know if you have to have an MRI with contrast to show MS lesions?
Hello, I am trying to get some additional information while waiing for the neurological appointment after MRI scan for my husband. He is 36 and he has experienced dizziness and headache for few days. And now scan is saying that he has 5 round and linear white metter hiperintensities in frontal lobes, 4 on the left and the largest measuring 1 cm is high in the right frontal lobe. Radiologist suggested demyeliation process and possible MS. His symptoms are gone now and he is feeling good. From your experience, is this clinical picture typical for MS? Thanks in advance Olga