I hope you are all as well as you can be. I haven’t posted on here for 5 years. I’ve been 6 years in limbo and had a period of wellness during 2013. I’ve been relapsing starting to recover then relapsing again .3 times in the last year.
I had an all clear MRI back in 2010, CFS was mentioned. I think because there was no evidence of anything else. I tried hard to get on with life and be positive.
I was again referred back to neurology last June, after a period of foot numbness and weakness in my legs, blurred vision, bowel and bladder issues, sunburnt feeling on my skin on my lower back.
I had another MRI end of December '15 and my appointment to see the neurologist for results is next week.
I feel confined to my home as I’m afraid to walk anywhere in case I trip or fall. I’m seriously getting depressed and I’m terrified that my MRI will be clear again. ( how bonkers is that?) I can’t bear feeling like a hypochondriac any more. The worst part is hiding it from family and friends, because as they say ’ you look great, you look so well’
Part of me feels that surely if my MRI was abnormal then I would’ve heard by now.
Limbo is soul destroying. I don’t believe I ever did have CFS… It never seemed to fit my symptoms.
I just hope this is the end of my limbo journey next week.
Thanks for reading this, I know you people will understand. My hubby doesn’t even like me talking about MS as a possibility so its good to unload here.