Hi everyone. New to this, hoping to stop the ‘drowning’ in information feeling!
I have had odd symptoms for three years. Started with pain in eye. Moved to pins and needles in feet and then lower legs. Reduced strength in legs - I was a keen runner but no longer do this as I struggle sometimes to climb the stairs. My newest symptom is pins and needles in my head. Sometimes it is on top of my head and feeling like crawling under skin, sometimes it’s down one side of my face.
I had a LP - clear. MRI showed small lesions. This was a long, 45 minute scan. 6 months later I had another MRI. This was about 20 minutes and showed lesions again. I moved area then and went to new neurologisit. A year later I had another MRI at a different hospital. This was 10 minutes of just my head and neck - and showed nothing. Apparently all of the lesions have gone.
Neurologist has discharged me. But I still can’t walk up the stairs without dragging myself up using the banister. I certainly can’t run!! And the pins and needles is driving me insane.
I know it probably isn’t MS as LP was clear but do I just accept being discharged after all of this? There is SOMETHING going on…
Any advice very much appreciated, thank you.