Hi to all
i am new to the site but my local ms branch said give it go there are really helpfull and supportive so here goes. I had a car crash in 1999 and suffered a spinal disease which through the accident i was diagnosed with ms by Stoke on Trent Hospital. I had just had a baby in 2002 and they decided to test for ms after i had given birth as ms relapses after birth which i did for 4 month’s. I had lesion’s on both optic nerves and delayed responses to the eye nerves. Now it’s 2012and im still fighting to get medication for ms. I can’t be admitted to hospital due to childcare problem’s i have no family so when i relapse my g.p is fab he treat’s me from home. The problem i have is the following
my epliepsy is effected by beta interferon and there is a risk of another steven johnson’s syndrome
I have had to much steriod prednisolne so i need to have a break as i have arthritis so they don’t want osteoporoiss to set in
Finally i suffer with very low blood pressure so avonex and rebif will make this worse
Im sorry to waffle but ive hit rock bottom i don’t know how to get round my epilepsy consultant to get a second opion i have been refered to a ms consultant but my nhs as refused as i already have a epilepsy consultant arggg im getting no where please help.