The only thing that really matters is what you can, and can’t do. Not too fussed about the name.
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Yes, I do agree with that Whammel.
Only the “classification” can be very important when it comes to whether one is offered treatments, i.e. DMTs, or not.
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Yes Whammel, I agree. I was grateful to get a diagnosis that told me I wasn’t going mad, but I’m only bothered by the symptoms. The type is irrelevant to me and most people who don’t specialise in ms aren’t aware there are different types. I was a nurse for over 20 years and didn’t know half as much about the illness as I do now.
I only wish people from the benefits office, insurance policies etc would understand the term and stop bombarding us with forms when they should know that we’re not going to suddenly get better or be cured.
Cath x
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Another neurologist would prefer to use the term “transitional progressive” for me, as opposed to my own neurologist’s “progressive relapsing”. Yes, there are many terms, theories and ideas, that obviously have nothing to do with coping with the disease. But with a label of “primary progressive”, I would certainly not have been offered DMF or beta interferon. Not that I want these, mind you.