Boudica How do you feel about it? I’m so pleased you finally got a diagnosis, it’s been a very long road for you. I know it’s not a great diagnosis to have but I know I was relieved to know what was wrong as I felt like a hypochondriac constantly being told what wasn’t wrong and being poked and prodded by all different doctors. Maybe now you can get any added help you need.
Take care
Cath
Thanks Cath.
Actually I am fine about it…I know no-one would welcome a diagnosis of MS. Who the chuff would!
But compared to the HSP one, which carried a 50/50 chance of being passed down to my offspring, it`ll do for me!
All through the years of tests, hospital appointments, sick notes, summonses to DWP etc…I was never made to feel it was all in my bonce! I`m grateful for that.
There`s no different treatments, physio, mind blowing DMDs nor owt to help.
I`m managing it with amitriptyline, Wheelchair Services are great, and my hubby and carers are champion!
Boudsxx
Does everyone with ppms walk with aids ? I thought they did as I did before diagnosed with ppms
Hi Alysea, the answer to your question is no…but many do.
Perhaps we could take a poll here…
I am a full time wheelchair user
Boudsx
I have PPMS and sometimes use walking poles outside but only if I’m going more than a mile or so.