Secondary Progressive

[quote=“SquiffyG”]

How do you know if your pp or sp I seem to have all and more than people saying they are sp/pp I just don’t understand, Arrrrr. My nuro says I’m borderline?

[/quote] Squiffy, l was diagnosed 32 yrs ago - and told l had Secondary Progressive. l have never had a ‘remission’ - so for years l have been SP - until someone on here said l cant be - that l must be PP - as this is how it started. We are all so different.

l have been taking LDN for about 6yrs - also high dose vit d3/b12 - And Sativex to help with spasticity. Started taking MSSentials which contains over 30 combined vits/minerals - recommended for pwms. Hopefully, they are keeping me from progressing - and HOPE is all we have left to hang on to.

I am on

Tysabri (continued from my RR days by my very progressive neuro)

80mg/day Simvastatin (specifically for PMS)

clomazepam, regurin, fampyra (for symptom relief)