Secondary progressive, the same but worse?

I do SO recognise the way one can miss in one’s self things that would be completely obvious in another person! Every time it happens to me, I wonder whether I am going mad, but actually that is just normal. I think we all have an in-built unconscious defence mechanism that knows how much we are ready to face at any particular time, and that sometimes holds info back without telling us!

Alison

12 years after diagnosis it’s still no clearer to me what the differences between types of MS are! The numb feet/ankles and memory problems I had from the very start are still with me, I’ve since had two bouts of double vision, one of numbness up to my waist (but I could still walk - go figure!) and one of totally numb hands (good for getting things out of the oven … but not the blisters), all of which have gone away (apart from the feet/memory). I’m on Tysabri so I’m obviously being treated as RRMS but I’m not sure if I really am. I’ve got to the point where I don’t really care what it’s called as long as I’m ‘OK today’ - I’m not sure the ‘rules’ are clear enough to anyone to give a true picture of what goes on…

Your MS sounds a bit like mine - mine kicked ass from day 1 as well, and I did not recover completely from relapses right from the start. They have always been definite relapses though, with some recovery (nearly total in some cases, but not many alas). I’m on Tysabri too now. Wonderful stuff, fingers crossed.

Alison