No Geoff, I didn’t have any side effects from Copaxone either - my major problems started after I was taken off it 
I guess we are both sooooooooooper lucky not to get any of those horrible side effects which (apparently) everyone gets!
So sick of all this pseudo science (and that’s putting it politely)
Kx
Oh really sorry I joined only recently DoctorGeoff, didn’t realise I had to have joined a long time ago to have an opinion. I only posted to let people know I am trying it to see if it works and why I have decided to try it. My choice, my money and nothing to lose except a few pounds. You obviously won’t be interested if I have any improvement from it because what could I possibly know as I have only just joined. Some people are so easily upset by another persons opinion and choice. I just thought some people might be interested in what happens, nothing more nothing less.
Fanny Adams
I didn’t say I’m happy to pay for it because a particular company is not, I meant I am happy to pay for it as it is not funded and is the only way I can try it.
Just popped on here to have a read. I’m wondering how nickyah feels having only just joined the forum. We are all entitled to our own opinion. This site and the forums are supposed to offer support aren’t they? I don’t think there has been much of a welcome to nickyah, far from it.
Thanks Aimz, I thought I’d said something really wrong with the comments from others.
Dr Geoff and Rizzo as you know nothing about me, thought I would let you know I am secondary progressive so I don’t have much choice but still wouldn’t take DMDs if I could, LDN has done wonders for me with no injections or side effects, sorry if that bothers you. You choose what you feel is right for you and I will do what I feel is right for me, with or without your approval.
LMAO!!!
There’s a flaw in the anon function.
If one takes a wee look at Aimz’s profile, one can see that she is the person who posted anon earlier in this thread, basically encouraging us to fork out £275 for this “treatment”.
“Just popped on here for a read?” with apparently no vested interest whatsoever???
Nickyah, I’m all for personal choice. However, I am 100% against scaremongering, and that’s what I call statements like DMDs “do not slow… progression and have horrible side effects”.
If you choose to say things like that, then I choose to show that it is nonsense.
Well Rizzo, tell that to the people I know who have no luck with them and horrible side effects including necrosis from injection sites and liver damage, there are plenty of differing opinions by experts, some are for, some are against. You my dear seem to know it all and have a very rude manner. Dr Terry Wahls had tried all the DMDs and continued to progress. She was in a reclining wheelchair. After rapidly declining, she did a load of research and changed her diet to paleo and is now walking and riding a bike to work. She is running a study in America, I expect you’ll dismiss that as well
STOP!!!
I’m really interested in this topic and would like discussions to remain polite so that we can hear the outcome of Nickyah’s experience in due course.
Pleeeeeeeeaaassseee.
Sorry Lolli, I guess I’m getting suspicious in my old age. The timeline is interesting though, don’t you think?:
16/8 Juniper posts about a leaflet she’s received.
16/8-20/8 Various people reply to her about it.
The post drops off the front page because no one else replies.
24/8 “Anon” (who we now know to be Aimz) posts about how it’s worth a try at only £275.
24/8-29/8 Various people reply.
The post drops off the front page because no one else replies.
6/9 Nickyah, in her first post ever, replies to a thread that is no longer on the front page, taking it back to the front page.
Geoff and I respond because of her derogatory claim about DMDs.
Aimz, claiming that she has no interest in this thread (which we now know to be untrue) and posting for only the third time in a year (two of these posts being on this thread), jumps in saying how horrible we’re being to a newbie.
But I’m probably just being overly suspicious. Maybe I need to take a chill pill 
[quote=“rizzo”]
LMAO!!!
There’s a flaw in the anon function.
If one takes a wee look at Aimz’s profile, one can see that she is the person who posted anon earlier in this thread, basically encouraging us to fork out £275 for this “treatment”.
“Just popped on here for a read?” with apparently no vested interest whatsoever???
[/quote] Well, knock me down with a feather, Rizzo, you are absolutely right! That’s a pretty serious security flaw that admin are going to have to plug fast, for the sake of posters who are using the anon facility appropriately and for genuine reasons. Pretty funny on this occasion, though, I must say. Alison x
[quote=Lollipop]
STOP!!!
I’m really interested in this topic and would like discussions to remain polite so that we can hear the outcome of Nickyah’s experience in due course.
Pleeeeeeeeaaassse
And its please from me as well - let any of us who are interested find out for ourselves - many of us are SPMS and have very little chance of any type of treatment to help us - and time is ticking away for us. l desperately want to find something that MIGHT help - not just for me but for my family as well. Especially my lovley daughter - who l fear might also develop MS - she has already had glandular fever/lBS both linked to MS and autoimmune diseases.
Now don’t start shouting at me Rizzo - l am not in the mood - l have enough problems.
Chill out!!!
Why would I “shout” at you Frances?
I’m not going to go into details for the sake of her privacy, but my daughter is also at high risk of developing MS.
If the worst should happen, I hope that her neurologist will help her with the very best meds available: ones that have been properly studied in clinical trials.
In the meantime, I will continue to remind her to take her D3 supplements and to not smoke: the only things that have been shown to be involved in the development of MS that are under our influence.
As Lollipop has said PLEASE STOP. This is turning into a ‘handbags at ten paces’ farce and your Moderators would rather be watching the paralympics than reading all these posts.
We can, if needs be, close threads down completely - but we don’t want to. We like people to be able to discuss the relative merits or otherwise of different treatment regimes.
Liz [Moderator]
Hi Everyone,
I’m new here and I’m here for my Mum who was diagnosed with MS about 9 years ago. She has been using LDN for the last couple of years and like others has just received a leaflet about ProtoPac with her last prescription of LDN. She has asked me to find as much out as I can about this new treatment but I’m struggling to find information I can take to her to help her make a decision about it. Can anybody offer and info or where i can find out more. Has anybody tried it themselves and has first hand experience of it.
Thank you in advance of any advice offered
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